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The £1 Million Care Bill: Why You Can’t Always Rely on Care Homes for Funding Advice

James Urquhart-Burton James Urquhart-Burton
3 min read

Care Home Funding

A recent, heart-wrenching article in This is Money by Andrew Penman highlighted a reality that, as a solicitor specialising in Continuing Healthcare (CHC), I see far too often. The headline figures were staggering. Penman’s uncle, Richard, has paid nearly £1 million in care fees over a 30-year period.

To speak to a CHC expert call 0113 320 5000

For many families, reading that figure is terrifying. But the most "infuriating" aspect of Richard’s story wasn’t just the cost - it was the battle resistance encountered in looking into this funding, which should be made available to people with complex needs.

The "Holy Grail" of Funding

NHS Continuing Healthcare (CHC) is often described as the "holy grail" of care funding because it covers 100% of care fees, including accommodation, and crucially, it is not means-tested.  It can be worth thousands of pounds every week for those with significant physical or mental health needs.

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However, as the article correctly points out, the rules are "opaque" and access is fiercely guarded, with increasingly high numbers of all CHC claims currently being rejected. The article cites 83% of all cases, which is a huge increase on previous numbers.

The Care Home Conflict of Interest

One of the most critical takeaways from Andrew Penman’s experience is a warning I frequently give to my own clients:

Do not rely on your care home to tell you when or how to apply for CHC.

In Richard's case, when his nephew asked the nursing home about eligibility, he was told there was "not enough complex nursing care evidence to support this."  Yet, simultaneously, the home was using Richard's "increasing care needs" to justify hiking his annual fees to over £74,000.

The contradiction is maddening. How can a resident have needs that are complex enough to warrant massive fee increases, but not complex enough to warrant NHS funding?

The uncomfortable truth touched upon in the article is that supporting a CHC application is often not in a care home's financial interest. Private beds are generally more profitable than NHS-funded beds. As a solicitor, I do everything in my power to help families to bridge that gap and ensure your relative's assessment is undertaken pursuant to the criteria. 

It’s About the Care, Not the Illness

Another common misconception highlighted in the piece is that eligibility depends on a specific diagnosis. This is incorrect. As the article notes, the criteria for funding isn't the illness itself (whether it's a stroke, dementia, or otherwise), but the "care required as a result." 

Even if CHC is refused and no appeal is to be pursued, families should be aware of other options, such as NHS Funded Nursing Care (FNC). However, it’s important to note that, whether not FNC serves to reduce, the fees payable will likely depend on the contractual agreement the service user has with the care home. Families should also consider taking independent financial advice to ensure options for servicing long term care fees is fully explored.

Don't Take "No" for an Answer

If you have received a rejection letter, do not assume it is the final word. The system is described by experts as "unfair and inconsistent," but you have the right to appeal to the local Integrated Care Board within six months.

Navigating the "maze" of CHC is daunting. But with fees easily reaching £74,000 a year, ensuring you are receiving every penny of funding you are entitled to is not just a right - it is a necessity.

If you are struggling with a CHC checklist, a Decision Support Tool, or an appeal, our team is here to help. Call us on 0113 320 5000 or email jub@winstonsolicitors.co.uk.

Client feedback

I engaged Mr James Urquhart-Burton to act for me in relation to a CHC decicion with regard to my mother's declining condition (due to Alzheimers disease). A decision that I felt was unfair and was worth challenging. I knew that I would need the support of someone who was familiar with all the processes and policies and working with James confirmed that he knows "his stuff" in this field. James proved to be expert in extracting relevant information from my statements in order to take the matter to formal appeal where, between his knowledge of the system and my records and familiarity with my mum's situation, we managed to reverse the negative decision made by the NHS Assessor. We, as a family, are very grateful for the legal support we had from James in this matter.
Annette
I can only praise the care and advice provided by James in respect of the possibility of obtaining NHS Continuing Health Care for my relative. Unlike the most advertised company offering the service, I was not asked to pay for their complete service in advance. Winston charged me on a time spent basis. This meant that having evaluated my case and concluded, after consultation with me, that the chances of sucess were slim to nothing, I only had to pay a fraction of the price quoted and asked for by the TV advertised comapny. I would reccomend them to anyone.
Terence
I have found Winston Solicitors to be reliable, helpful and professional in my dealings with their conveyance and CHC specialties.
Melanie
Very professional and helpful. We were more than satisfied with the service delivered.
Martyn
Excellent support with a CHC case - James Urquhart-Burton took time to listen to our situation, helped us focus on the relevant issues, and explained the process clearly. His guidance gave us confidence that the case was being properly prepared ahead of the MDT meeting. We felt supported throughout and were grateful for the care, professionalism and attention to detail shown by James and the wider team. I would happily recommend him and Winston Solicitors to anyone dealing with a CHC matter.
Anonymous
I was very pleased with the service provided. Advice provided in a timely and efficient manner, very clear and concise.
Anonymous
Excellent experience with James. He was highly professional, proactive and always available, even with only 2 week's notice. Faultless communication throughout, highly recommended.
Chris
This review is specific to James Urquhart Burton who has researched and progressed an appeal regarding the wrongful payment of care fees relating to someone for whom we had responsibility.James' understanding of this field and subsequent appropriate actions are only equalled by his empathetic and wholly professional manner. He was approachable, reassuring and inspired confidence at all times. We could not recommend his work more highly.
Frances
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